Since 2001, we have served those affected by Pelizaeus-Merzbacher Disease (PMD) through programs of education, research, service and advocacy. We are often a family’s only resource in the search for treatment and support. We raise awareness of the disease by bringing to light countless family stories of love and endurance to adversity. PMD can be treated in the near future, especially through new advances in gene sequencing and cell therapies. Time is of the essence to save a PMD child and spare the next PMD family the heartache of this disease.
The Foundation is a non-profit 501(c)3 organization. Your contributions are tax-deductible to the extent allowable by law. Click on a DONATE button below to make your contribution by credit card or Paypal.
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